Once you are registered with this registry, you are invited 4 times a year to record your "progression" along the Multiple Sclerosis road of life. You are given a non-identifiable number when you submit your information into the international registry .
Once completing a survey, you can go back over your previous answers for all the surveys you have done and can print them out for your local MS team so that they can share in your treatment options and they can see the progression since your last visit. The researchers behind the online registry never know the identities behind the numbers, but they do ask for your zip or postal code for trends within "localized" areas.
The information you present benefits the whole macro community of MS patients. When researchers gather information from a large community they can see trends in the disease (and deduce local influences etc) and make educated recommendations to MS professionals in your area to benefit your treatment and others who visit those professionals.
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